TY - JOUR
T1 - Status and recommendations of technological and data-driven innovations in cancer care
T2 - Focus group study
AU - Kondylakis, Haridimos
AU - Axenie, Cristian
AU - Bastola, Dhundy
AU - Katehakis, Dimitrios G.
AU - Kouroubali, Angelina
AU - Kurz, Daria
AU - Larburu, Nekane
AU - Macía, Iván
AU - Maguire, Roma
AU - Maramis, Christos
AU - Marias, Kostas
AU - Morrow, Philip
AU - Muro, Naiara
AU - Núñez-Benjumea, Francisco José
AU - Rampun, Andrik
AU - Rivera-Romero, Octavio
AU - Scotney, Bryan
AU - Signorelli, Gabriel
AU - Wang, Hui
AU - Tsiknakis, Manolis
AU - Zwiggelaar, Reyer
N1 - Funding Information:
The work presented in this paper is part of the BOUNCE project, which has received funding from the EU’s H2020 Research and Innovation Program under grant agreement number 777167.
Funding Information:
The workshop was supported by four European Union (EU) projects, namely BOUNCE, CATCH ITN, DESIREE, and MyPal, funded by Horizon 2020 (H2020). The BOUNCE project [5,6] considers clinical, cancer-related biological, lifestyle, and psychosocial parameters to predict individual resilience trajectories throughout the cancer continuum. Eventually, the target is to increase resilience in breast cancer survivors and help them remain in the workforce and have a better quality of life. DESIREE [7], on the other hand, aims to provide a web-based software ecosystem for personalized, collaborative, and multidisciplinary management of primary breast cancer by specialized breast units, from diagnosis to therapy and follow-up.
Funding Information:
The work presented in this paper is part of the BOUNCE project, which has received funding from the EU's H2020 Research and Innovation Program under grant agreement number 777167.
Publisher Copyright:
© Haridimos Kondylakis, Cristian Axenie, Dhundy (Kiran) Bastola, Dimitrios G Katehakis, Angelina Kouroubali, Daria Kurz, Nekane Larburu, Iván Macía, Roma Maguire, Christos Maramis, Kostas Marias, Philip Morrow, Naiara Muro, Francisco José Núñez-Benjumea, Andrik Rampun, Octavio Rivera-Romero, Bryan Scotney, Gabriel Signorelli, Hui Wang, Manolis Tsiknakis, Reyer Zwiggelaar. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 15.12.2020. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.
PY - 2020/12/15
Y1 - 2020/12/15
N2 - Background: The status of the data-driven management of cancer care as well as the challenges, opportunities, and recommendations aimed at accelerating the rate of progress in this field are topics of great interest. Two international workshops, one conducted in June 2019 in Cordoba, Spain, and one in October 2019 in Athens, Greece, were organized by four Horizon 2020 (H2020) European Union (EU)-funded projects: BOUNCE, CATCH ITN, DESIREE, and MyPal. The issues covered included patient engagement, knowledge and data-driven decision support systems, patient journey, rehabilitation, personalized diagnosis, trust, assessment of guidelines, and interoperability of information and communication technology (ICT) platforms. A series of recommendations was provided as the complex landscape of data-driven technical innovation in cancer care was portrayed. Objective: This study aims to provide information on the current state of the art of technology and data-driven innovations for the management of cancer care through the work of four EU H2020-funded projects. Methods: Two international workshops on ICT in the management of cancer care were held, and several topics were identified through discussion among the participants. A focus group was formulated after the second workshop, in which the status of technological and data-driven cancer management as well as the challenges, opportunities, and recommendations in this area were collected and analyzed. Results: Technical and data-driven innovations provide promising tools for the management of cancer care. However, several challenges must be successfully addressed, such as patient engagement, interoperability of ICT-based systems, knowledge management, and trust. This paper analyzes these challenges, which can be opportunities for further research and practical implementation and can provide practical recommendations for future work. Conclusions: Technology and data-driven innovations are becoming an integral part of cancer care management. In this process, specific challenges need to be addressed, such as increasing trust and engaging the whole stakeholder ecosystem, to fully benefit from these innovations.
AB - Background: The status of the data-driven management of cancer care as well as the challenges, opportunities, and recommendations aimed at accelerating the rate of progress in this field are topics of great interest. Two international workshops, one conducted in June 2019 in Cordoba, Spain, and one in October 2019 in Athens, Greece, were organized by four Horizon 2020 (H2020) European Union (EU)-funded projects: BOUNCE, CATCH ITN, DESIREE, and MyPal. The issues covered included patient engagement, knowledge and data-driven decision support systems, patient journey, rehabilitation, personalized diagnosis, trust, assessment of guidelines, and interoperability of information and communication technology (ICT) platforms. A series of recommendations was provided as the complex landscape of data-driven technical innovation in cancer care was portrayed. Objective: This study aims to provide information on the current state of the art of technology and data-driven innovations for the management of cancer care through the work of four EU H2020-funded projects. Methods: Two international workshops on ICT in the management of cancer care were held, and several topics were identified through discussion among the participants. A focus group was formulated after the second workshop, in which the status of technological and data-driven cancer management as well as the challenges, opportunities, and recommendations in this area were collected and analyzed. Results: Technical and data-driven innovations provide promising tools for the management of cancer care. However, several challenges must be successfully addressed, such as patient engagement, interoperability of ICT-based systems, knowledge management, and trust. This paper analyzes these challenges, which can be opportunities for further research and practical implementation and can provide practical recommendations for future work. Conclusions: Technology and data-driven innovations are becoming an integral part of cancer care management. In this process, specific challenges need to be addressed, such as increasing trust and engaging the whole stakeholder ecosystem, to fully benefit from these innovations.
KW - Data-driven science
KW - Inventions
KW - Neoplasms
UR - http://www.scopus.com/inward/record.url?scp=85097788008&partnerID=8YFLogxK
U2 - 10.2196/22034
DO - 10.2196/22034
M3 - Article
C2 - 33320099
AN - SCOPUS:85097788008
SN - 1438-8871
VL - 22
JO - Journal of Medical Internet Research
JF - Journal of Medical Internet Research
IS - 12
M1 - e22034
ER -
